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Thank you for a wonderful site, my partner is just stepping on the road to transplantation and it is very comforting to find someone who can help us along the way. Thank you so much and lets hope 2007 will be a good year for us all.
2007-01-07 19:45:57 - Coventry UK
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Hi, Thanks for a great site, my partner discovered that he had dilated cardiomyopathy 3 yrs ago, and at 37 and previously very fit, found this very hard to deal with, he is now being referred for transplant and is very scared so your site has really helped us - we always knew that eventually this day would come but thought it was best to keep his own heart for as long as he could, until his last appointment with the consultant when he was told that his life expectancy would be longer if he had a transplant. Here's hoping for a great 2007 for all of us. Thanks again.
2007-01-06 23:26:01 - coventry UK
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Hi John, I had a heart transplant in July 2006, doing very well now. We have met once at Harefield. Looking foward to playing golf again, how do I get details about the charity golf day in May, would really like to participate. I am hoping to go to Edingburgh all being well, might see you there. Good luck for 2007.
Kind regards
Ray
2007-01-05 14:31:04 - chertsey surrey
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John, may you and all of your wonderful network of heart friends throughout the world, have a very "Happy New Year" and may all of your dreams and goals be fulfilled in the coming year 2007. GOD BLESS
Ol' Texas Bob
2006-12-25 19:56:53 - Texas USA
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What an amazing site you've constructed and what effort you must've put in. I'll write again, but for now let me inform you that I am probably the only Heart Transplant patient living in India. My surgery was performed in New York exactly 5 years ago! I'm 50 and female.
2006-12-11 18:47:26 - Bombay, India
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Inspiring website - my friend's husband just had a heart transplant 4 days ago. Everything went smooth - like right out of a textbook. It truly is a miracle that this can be done. He has a long road ahead, but we are all taking it one day at a time. Thanks for sharing your story - lots of emotions were triggered - happy , sad, hopeful , etc... Bless you and yours...Christy
2006-12-09 17:05:05 - Pittsburgh, PA
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Hi John, just having a nosy round your website-its very interesting to read another transplant patients' experience! I was 16 when i had my heart transplant at the Freeman Hospital in Newcastle. i am 21 now and enjoying life to the full. Doesnt seem like anything has changed, i have the same social life as my friends, i work for a big oil & gas organisation and am currently decorating my new flat. life couldnt be better, how can i put pics up on ur site? i am told constantly that if i didnt tell anyone what iv had done they wouldnt have known,
kind regards
Emily
2006-12-05 12:27:40 - Aberdeen
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Our daughter had a heart transplant back in January 2006. She was 13 weeks old. We had to travel from Northern Ireland to GOSH
We recently celebrated her first birthday and decided to use that occasion to go public with her story.
http://news.bbc.co.uk/2/hi/uk_news/northern_ireland/6035347.stm
She first took seriously illl on the 22 November 2005. So this time last year we were going through hell. Thankfully we got the gift of life.
It is a very surreal feeling to look back at this time last year and as we approach the first anniversary of her transplant. However all is going great at the minute.
Great Site!!!
2006-11-28 00:31:20 - Warrenpoint, Northern Ireland
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hi john
this a very good web site i have learnt more by looking at your site
chat soon charlie
2006-11-23 12:54:49 - shepperton
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John, you have made a good site with plenty of info, all the best Vic
2006-11-12 02:47:03 - Birmingham UK
Hello Vic
It was great to meet you today and be a passenger on the Double Decker Route Master you drove during the Lord Mayor Show. I will visit your website www.mylungtransplant.pwp.blueyonder.co.uk and read all about your double lung transplant. All the very best for the future - John |
| 2006-11-12 05:16:41 |
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Hi John - Chatted with you today at the lord Mayor Show, many thanks for the pin and postcard - as promissed I have just gone on line and joined the organ donor register - Very best of luck to you in the future - Ben 
2006-11-11 22:32:28 - Clapham
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Many thanks for such a great website, you are an inspiration to all of us..Please keep up the good work
2006-11-07 20:10:00 - London
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Been on the waiting list for 6 months, life isn't so great at the moment.
Your website gives me hope and keeps me going.
God Bless You Tony
2006-11-02 18:41:55 - Kent UK
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Dear John
It was really good reading through this website, congats! I too have had a transplant 13 years ago this year! I have competed in bodybuilding completions run marathons and had a beautiful bouncing baby boy who is now 2 years old! and there is still life in in me yet!!! i am hoping to compete next year in bodybuilding again all my love vickie xx
2006-10-29 12:07:54 - UK
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John, I would like to take the time, if you don't mind, to report to your site visitors, that one of our beloved heart pals, Andrew Wilson(Journeyman), whom you have posted his heart story on your site several years ago, passed away July 7th 2005 there in London. The 1st anniversary of his passing will be this week July 7th 2006. If any of your site visitors would like, they could post a comment on his own website guestbook http://www.transplantsunited.com/ to offer their thoughts and prayers, to help and ease his parents grief & pain of loosing their beloved son, Andrew. I live all the way over here in Texas USA and I discovered Andrew and his miraculous
2006-10-29 11:59:49 - Texas
Hello Bob
I chatted to Andrew several times and past on somes tips to help him build his website. He will be truly missed.
John |
| 2006-10-29 12:02:18 |
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Read your diary very interesting to know what happens and very touching. my husband has just had an (ICD) implantable cardioverter defibrillator fitted and is going on the active transplant list tomorrow (5TH OCTOBER) at the freeman's hospital. its comforting to read other peoples stories and how they get through as we have had great support by are heart nurse at the beginning at south Tyneside Joanne couldn't do enough for us and helped myself as well as my husband .Freeman's hospital excellent staff and support and here's hoping there is a new heart out there for my husband, best wishes john keep writing your diary from dawn x
2006-10-29 11:57:18 - United Kingdom
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Hi John. This is a Texas mother than has a son that was put on the transplant list March 8, 2006. Reading your story helps me remember, there is another side, maybe with some setbacks, but getting there is so worth the issues. I liked your postcard, it shows hope.
2006-10-29 11:54:11 - Texas
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Great site and best of all it's from a recipient's perspective..... I had a heart transplant in August of 1999 at London Health Sciences Centre in London Ontario, Canada. Doing very well - no complications - and enjoying life to the fullest. thanks for the site Robert Larocque Waterloo, Ontario Canada
2006-10-28 18:21:31 - Canada
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I live in USA and had my heart transplant in the middle of the states in Missouri at a Heart Institute about 15 minutes from my home. I had viral cardiomyopathy. (enlargement and weakness of the heart) I waited 9-1/2 months for my pager to advise me my time was now. On 9/24/94 I received a heart from a women who had a brain aneurysm. Her total body donation helped over 200 people counting all the skin graphs. I have not had your good fortune of maintaining many abilities. I have had both hips replaced and my right shoulder, all from the wonderful drug of Prednisone. No complaints, mind you, I live on the beach now in Florida and enjoy each and every day. The good out weighs the bad. I lost many weeks this summer when I came down with BOOP, which is a lung disease. How nice it is to breathe again. Still doing rehab and building my strength back up. I do my very best not to let my guard down and always show a positive attitude. I believe that is what has gotten me this far. I have much more to do in the years to come. Even if it as simple as to put a smile on another’s face. I can always see someone in worse shape than me at the hospital or doctors. I am one very lucky man. My 12 anniversary is coming up and I hope to surpass 20. It has truly been a roller coaster ride but the pains have really been only seconds out of a lifetime. I enjoy NOT working and always find things to do. Love to research the www, watch some TiVo, lounge at the beach with my sweetie and tiny Yorkie. All in all my life has been good. Like you, I wondered if I would survive until transplant, then wondered if I would survive THE transplant and the how long I would last after transplant. I spent 5 years waiting to die, in year six I started thinking about the future and discontinue the negative thoughts. My Mom has been up their waiting for me for 25 years. I keep telling her in my mind that I can't wait to see her, but not just yet. All my other current body parts are within the limits of a normal body and I just have to cross my fingers and hope that illness will stay away from me. I am living a good and wonderful life and love to share my story with all. It is somewhat soothing and I love how amazed the listener is to all the things I have endured. Again, no complaints. Just the facts. Richard Sharp, Ponte Vedra Beach, Florida (near Jacksonville)
2006-10-28 18:17:31 - Florida USA
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im Egyptian student in the last year of faculty of medicine, very interested in cardio-thoracic surgery ;specially heart -lung transplant, as Prof.Sir. Magdi Yacoub is my native . im dreaming in following up his way after i end this last year then fly to London. Dragon_of_nile@yahoo.com
2006-10-28 18:15:32 - Egypt
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I am Andre Pienaar living in South Africa and I was told two weeks ago I had to undergo a hart transplant I am very worried and do not no when i am going to get a donor
2006-10-28 18:13:30 - South Africa
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I am a brother of a heart transplant (Howard Little) he had his 20 anniversary Oct. of 2006. Without this he would not be here today. I all so have a brother-in-law that was up for a transplant but was opt for medication and this was successful for him (10 years).
Jack Little
2006-10-28 18:11:55 - USA
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hi john my name is Patrick i live in Dublin and had my transplant back in 93. play for my local football team and am as fit as a fiddle. nice site
2006-10-28 18:10:41 - Dublin
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Well Done in Venice! It must have been hard after having a chest & kidney infection. 
2006-10-28 16:54:54 - Ashford Middlesex UK
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Well Done on completeing The Venice Marathon you are fantastic xxx
2006-10-28 04:08:36 - Australia
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Great website - Thank you for taking the time to build it....
2006-10-28 04:06:04 - USA
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